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When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
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One of our many trips to the ER. RC wasn’t able to keep anything down, and I couldn’t get his fever to break. When your child has Duchenne Muscular Dystrophy, you don’t take chances. Vomiting and fevers can be serious because long-term steroid use can put him at risk for adrenal insufficiency. Dad was completely wiped out once RC started feeling better. 😂 Meanwhile, RC bounced right back, bright-eyed and bushy-tailed. And me? I stayed in full mom mode the entire time, watching every symptom, ev
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Day 3/30 💪 i have Muscular dystrophy. this condition causes my muscles to become weaker over time. Thanks for being part of my journey ❤️ #musculardystrophy #tuchizila #progress #motivation #training
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