Nearly all children with spinal muscular atrophy who started on Evrysdi before symptom onset are walking after three years, ...
Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...
Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...
SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...
The apitegromab approval process reminded guest writer Joanna Buoniconti of lessons about keeping hope alive while protecting ...
The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...
For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.
If you have spinal muscular atrophy (SMA), air travel often requires extra planning. From navigating crowded airports to ensuring your equipment is handled with care, the process can be stressful.
There is currently no cure for spinal muscular atrophy (SMA) yet, but there are a number of treatments that can delay the progression of symptoms, as well as several experimental treatments currently ...
For adults with spinal muscular atrophy (SMA), a genetic disease that progressively weakens breathing muscles, the approved treatment Spinraza (nusinersen) offers a crucial long-term benefit — stable ...