The U.S. House of Representatives has passed legislation that would renew the ACT for ALS, a landmark federal law that supports amyotrophic lateral sclerosis (ALS) research and helps people with the ...
The Muscular Dystrophy Association (MDA) brought its Engage Community Seminar to Hershey, Pennsylvania, on July 18, uniting ...
RAG-17 is an experimental RNA-targeting therapy designed to lower toxic SOD1 protein in people with SOD1-ALS. A six-person trial found RAG-17 was well tolerated, with no serious side effects. RAG-17 ...
Although I continue to rely on a rollator to help me walk inside the house and a mobility scooter when I’m out and about, getting the power wheelchair was a strategic, planning-ahead decision. I live ...
Study examines Qalsody safety after approval “This study is the first to systematically conduct a post-marketing [safety] ...
A PBS documentary, "Loving John," explores a gay American Samoan man's final years with ALS. It highlights the disease's ...
Over the last five years, Canadian ALS clinics have shifted from offering genetic testing mainly to people with a family ...
While the findings align with previous research linking smoking to ALS, researchers found no consistent evidence that heavier ...
An AI-powered brain implant helped an ALS patient regain speech by decoding brain signals. This neuroprosthesis translates ...
Of all the scenes that stay in my mind from my late husband Jeff’s time with ALS, this is among the most enduring: Jeff, wearing a Navy baseball cap and a weathered T-shirt, sitting behind the console ...
While genetics alone do not cause amyotrophic lateral sclerosis (ALS), a large number of genetic mutations have been associated with the neurodegenerative disease. Such mutations can increase a person ...