Spinal muscular atrophy explained
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A County Down mother, whose five-year-old daughter has Spinal Muscular Atrophy (SMA), has said singer Jesy Nelson should know "there is light at the end of the tunnel". The former Little Mix star revealed that her twin baby daughters have the condition, which Nelson described as the "most severe muscular disease".
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Boy, 5, Born with Rare Genetic Disorder Walks by Himself After Receiving World’s Most Expensive Drug
A 5-year-old boy who was born with a rare genetic condition is now able to walk by himself, his mother has said, after receiving the world's most expensive drug, which costs around $2.4 million.