Since he was born, John Hudson Dilgen has lived with epidermolysis bullosa (or EB), a rare skin condition that causes skin to blister and tear at the slightest touch. He struggles with the rare ...

The 23-year-old, who had a rare and painful genetic skin disorder, was a staunch advocate for medical research.

STATEN ISLAND, N.Y. — Every other day, 8-year-old John Hudson Dilgen must endure an excruciating 90-minute bath in bleach or vinegar. Then, the special bandages from Sweden that encase most of his ...

is a fourth-grader at PS 1. He's a drummer in the school band and has performed in the school talent show. He's also a junior Webelo Scout in Cub Pack 21. And yet, John Hudson suffers from a rare ...

STATEN ISLAND, N.Y. -- Surrounded by a massive crowd of friends and family, on a street lined with fire engines and American flags, one special Staten Islander received a homecoming unlike any other.

NEW YORK -- The family of a teenager with a rare disability received a special gift Wednesday -- a new home. John Hudson Dilgen suffers from a rare skin condition, and thanks to the Tunnel to Towers ...

STATEN ISLAND, N.Y. -- A Staten Island teen living with a rare skin disease was recently given a chance to share his story with the world. John Hudson Dilgen, a 14-year-old Tottenville resident, was ...

Since he was born, John Hudson Dilgen has lived with epidermolysis bullosa (or EB), a rare skin condition that causes skin to blister and tear at the slightest touch. He struggles with the rare ...